 |
reuben |
reuben born TOF/OA/VACTERL 07/09/11 |
|
Sun Nov 11 18:21:50 -0800 2012 |
 |
emrah |
OA, Born in 2010, eparlakay@hotmail.com |
|
Sun Nov 11 08:56:33 -0800 2012 |
 |
Claire McCrindle |
Mum to Shannon tof/oa short gap born 16.05.11 |
|
Sat Nov 03 16:16:26 -0700 2012 |
|
Janine Meredith |
Isabella |
|
Wed Oct 31 07:24:26 -0700 2012 |
 |
Zachary |
Doing well |
|
Wed Oct 24 02:24:22 -0700 2012 |
 |
peter Heselden |
im a tof adult, find me on facebook if you want to talk about issues |
|
Thu Oct 18 02:03:19 -0700 2012 |
 |
Rourke |
Tof oa child |
|
Wed Oct 17 01:18:31 -0700 2012 |
 |
Aurelia Brown |
born 28May 2012 |
|
Tue Oct 16 07:32:33 -0700 2012 |
 |
Ben Smissen |
TOF |
|
Tue Oct 09 01:40:26 -0700 2012 |
 |
M.johnstone |
hi we have a 2yr old with Tofs |
|
Sun Oct 07 01:47:15 -0700 2012 |
|
Adam |
TOF/OA |
|
Tue Oct 02 03:17:35 -0700 2012 |
 |
Ethan clifford |
Ea/tef and vaters |
|
Sun Sep 30 20:57:50 -0700 2012 |
|
Ethan clifford |
Ea/tef and vaters |
|
Sun Sep 30 20:57:49 -0700 2012 |
|
Laithsmum |
Any one near me?? |
|
Sun Sep 30 15:17:40 -0700 2012 |
|
Ella Marie |
born Feb 2012, long gap OA, gastric transposition, doing well! |
|
Wed Sep 26 23:31:00 -0700 2012 |
 |
Lucy Hazlem |
Mum to Bertie born 02/05/12 TOF/OA + Vacterl |
|
Sat Sep 22 07:31:49 -0700 2012 |
|
Lucy Hazlem |
Mum to Bertie born 02/05/12 TOF/OA + Vacterl |
|
Sat Sep 22 07:31:02 -0700 2012 |
|
Karen |
Adult 49 |
|
Mon Sep 03 19:00:10 -0700 2012 |
|
Karen |
Adult 49 |
|
Mon Sep 03 18:59:07 -0700 2012 |
|
Emma tof mummy |
thysbell |
|
Sat Sep 01 13:54:38 -0700 2012 |
|
HALIMAH OWOSENI [link] |
HI EVERYONE |
|
Tue Jul 31 04:27:11 -0700 2012 |
|
HALIMAH OWOSENI [link] |
HI EVERYONE |
|
Tue Jul 31 04:27:09 -0700 2012 |
 |
Vicki Kingston |
Mum to Joshua 14/11/09 TOF + Vacterl. Email vicki@micropaint.co.nz |
|
Sun Jul 29 21:10:54 -0700 2012 |
|
Abbie Stubbs |
WE live in Cannock Wood Staffordshire |
|
Sat Jul 21 00:02:28 -0700 2012 |
|
Samuel Butler |
TOF 13/03/09 |
|
Sat Jul 14 10:56:00 -0700 2012 |
|
Kirsty Balestrand |
hi |
|
Sat Jul 14 10:28:29 -0700 2012 |
|
Rainey |
Tef type c |
|
Sat Jul 14 10:07:05 -0700 2012 |
|
joshua wilson |
joshua wilson tof/oa |
|
Sat Jul 14 09:53:23 -0700 2012 |
|
vicky |
mum of amelia |
|
Sun Jul 08 13:22:19 -0700 2012 |
|
Emanuele Giordano |
OA |
|
Fri Jul 06 00:43:31 -0700 2012 |
|
Josh |
Born 02.10.07 |
|
Sun Jun 24 16:00:20 -0700 2012 |
 |
Kate [link] |
mum to Matthew born 8.11.11, TOF/OA, treated at Alder Hey |
|
Thu Jun 14 12:49:35 -0700 2012 |
|
fionaoffer@hotmail.com |
Isabella born 15.11.07 (TOF/OA) |
|
Tue May 29 05:05:47 -0700 2012 |
|
Annelouise |
Mum to Lauren |
|
Thu May 17 15:45:08 -0700 2012 |
|
Deb |
Mother to 16yo H-Tof daughter |
|
Wed May 16 06:56:17 -0700 2012 |
|
Mason |
Son to Cori - TEF/EA repaired day 1; severe tracheomalacia, asthma |
|
Sun May 06 15:15:59 -0700 2012 |
|
Cori & Mason |
Mom & son with TEF/EA's repaired after birth |
|
Sun May 06 15:15:12 -0700 2012 |
 |
Lavinia Naskovics [link] |
EA FET born 17 August 2009 |
|
Thu Apr 19 06:08:02 -0700 2012 |
|
Vinay Jalla |
Parent to Balaji - TOF child born on 22 Jan 2012 |
|
Thu Mar 29 07:25:36 -0700 2012 |
|
Stina Wirfelt (has a TOF boy) |
Find me on facebook |
|
Thu Mar 22 17:21:26 -0700 2012 |
|
Tessa |
TOF, Leicester , 17 |
|
Fri Mar 02 13:02:19 -0800 2012 |
 |
Kata Degrell |
mom of baby boy Huba with TOF, G-Tube |
|
Tue Feb 28 09:27:22 -0800 2012 |
|
Finley Oliver Watkins |
19/07/11 TOF |
|
Sat Feb 25 10:15:12 -0800 2012 |
 |
Nitta (Kende's mum) [link] |
Kende born 03-03-2011 with TOF C type |
|
Fri Feb 24 09:54:00 -0800 2012 |
|
artemios |
born on 3/11/2005 with OA/TOF, trachiomalacia. wishing to get in touch with other families. mtheophilou@customs.mof.gov.cy |
|
Fri Feb 24 06:08:15 -0800 2012 |
 |
lucas christian piftor |
EA FET born 29.12.2010, georgiana_violeta@yahoo.com |
|
Thu Feb 23 12:23:12 -0800 2012 |
|
Sarah Harris |
Mum to Rebecca TOF/OA |
|
Wed Feb 22 15:33:22 -0800 2012 |
|
Sophia |
Par |
|
Fri Feb 17 17:35:28 -0800 2012 |
|
Katy Moylan |
Mum to Conor |
|
Fri Feb 17 04:17:33 -0800 2012 |
|
Katy Moylan |
Mum to Conor |
|
Fri Feb 17 04:17:29 -0800 2012 |
|
Katy Moylan |
Mum to Conor |
|
Fri Feb 17 04:17:25 -0800 2012 |
|
amanda [link] |
Lilly TOF/OA 16/01/12 looking for others to talk to please hunny_as@yahoo.com |
|
Thu Feb 16 15:49:18 -0800 2012 |
|
Robert Firchau |
born 10-18-06 EA/TEF Type C |
|
Wed Feb 15 08:49:14 -0800 2012 |
|
mum of Artemios |
born on 3/11/2005 with OA/TOF, trachiomalacia. |
|
Wed Feb 15 06:02:54 -0800 2012 |
 |
Sergio O'Connor [link] |
Twin Sergio has an unrepaired long gap atresia. |
|
Mon Feb 13 06:17:53 -0800 2012 |
|
David Wood |
Born 1953 - EA/TEF |
|
Sat Feb 11 10:37:09 -0800 2012 |
|
Beatrice |
3 Dec 2008 Milan EA type A long gap/ gastric pull up in January 2011 |
|
Thu Feb 09 07:38:20 -0800 2012 |
|
Jane L |
Adult TOF : Born 1952 |
|
Thu Jan 19 12:53:41 -0800 2012 |
|
eilidh latimer [link] |
i am a 14 year old tof |
|
Wed Jan 18 14:46:08 -0800 2012 |
|
eilidh latimer |
i am a 14 year old tof. |
|
Wed Jan 18 14:42:19 -0800 2012 |
|
Nikki Bozdogan |
Brit living in Sydney |
|
Sun Jan 15 20:04:20 -0800 2012 |
 |
Rory |
hi |
|
Sun Jan 15 10:31:59 -0800 2012 |
|
coopah |
gratte |
|
Sun Jan 15 08:24:48 -0800 2012 |
|
Caroline & Matthew Legg [link] |
Parents to Thomas TOF/OA |
|
Mon Jan 09 19:00:26 -0800 2012 |
|
JP |
TEF/EA type C 2004 |
|
Mon Jan 09 15:29:13 -0800 2012 |
|
Emma Holland |
Mum to TOF Rebecca born 01.07.10 emma_holland@msn.com |
|
Mon Jan 09 15:27:46 -0800 2012 |
|
sarah & jack dawson |
both tof/oa feingold syndromw |
|
Mon Jan 09 14:50:31 -0800 2012 |
|
Hayley (mum to Finley) |
Finley 01/10/2009 born TOF/OA |
|
Mon Jan 09 13:46:36 -0800 2012 |
 |
Cormos Ottilia & Bogdan |
My daugther Pure EA (c_ottilia@yahoo.com) |
|
Mon Jan 09 13:22:07 -0800 2012 |
 |
james wharton |
jack wharton tof |
|
Mon Jan 09 13:11:29 -0800 2012 |
|
vanessa |
Ea/TEF mama |
|
Mon Jan 09 13:01:10 -0800 2012 |
|
Karen McEwan |
Mum of Scott TOF/OA |
|
Sun Jan 08 16:51:04 -0800 2012 |
 |
Keri |
mum to Blake TOF/OA |
|
Sun Jan 08 14:01:57 -0800 2012 |
|
Penny |
mom to Jayden, born 08.11.11 |
|
Sat Jan 07 15:14:04 -0800 2012 |
|
Nicole |
Mum to Adam who has OA DOB 16/11/11. Looking for others to talk to email nicole2000@hotmail.co.uk |
|
Fri Jan 06 04:20:23 -0800 2012 |
|
Chantel Stephens |
30 yr old TOF adult |
|
Fri Jan 06 04:15:09 -0800 2012 |
|
niomi bennett |
my child has a tof |
|
Wed Dec 28 13:33:41 -0800 2011 |
|
Louise |
Mummy to Benjamin Born May 2009 TOF/OA TYPE C |
|
Tue Dec 27 16:00:43 -0800 2011 |
|
Robert Thompson |
Robert's location |
|
Mon Nov 28 06:49:20 -0800 2011 |
 |
kimberley |
alfie 10weeks old |
|
Sun Nov 27 06:20:41 -0800 2011 |
|
kelly |
mummy of a baby boy with TOF/OA |
|
Tue Nov 22 18:56:02 -0800 2011 |
|
Helen |
My son had a TOF & required 2 operations. He is now 23, 6'2' & healthy. |
|
Tue Nov 22 01:24:53 -0800 2011 |
|
Born 2011 |
EA/TEF |
|
Thu Nov 17 21:01:05 -0800 2011 |
|
Mike and Louise Brown |
Hannah 05.06.92 |
|
Thu Nov 17 17:47:31 -0800 2011 |
|
Wil Anderson |
Originally from Brisbane Australia |
|
Tue Nov 15 17:48:20 -0800 2011 |
|
Natalie Dawn |
TEF/EA Born 2010 |
|
Tue Nov 15 01:02:38 -0800 2011 |
|
Lucy TOF/OA |
tof child |
|
Sun Nov 13 09:54:40 -0800 2011 |
|
Lee Barnrd |
Born 1979 with TOF |
|
Fri Nov 11 23:20:30 -0800 2011 |
|
Orli |
Adult TOF |
|
Thu Nov 10 21:31:51 -0800 2011 |
|
jill bell |
support groups for our baby with tofs |
|
Mon Nov 07 15:42:59 -0800 2011 |
|
jill perry |
support group tof baby |
|
Mon Nov 07 15:41:24 -0800 2011 |
|
Callum Wood |
tof 8yrs old |
|
Sat Nov 05 19:21:44 -0700 2011 |
|
Callum Wood [link] |
tof 8yrs old |
|
Sat Nov 05 19:19:14 -0700 2011 |
|
Jamie Sidwell |
DOB 21/04/2010 |
|
Fri Nov 04 11:23:03 -0700 2011 |
|
Fran Gowler |
we live in Loughton |
|
Fri Oct 28 16:05:22 -0700 2011 |
|
claire [link] |
mum to Peter. born 10th March 2008 |
|
Sat Oct 22 04:51:23 -0700 2011 |
|
karen |
mum to charlie (tof,oa) |
|
Sat Oct 22 04:32:18 -0700 2011 |
|
karen (mum to charlie) |
charlie has tof/oa |
|
Sat Oct 22 04:11:02 -0700 2011 |
|
Sila Akpinar |
born with Tof,OA |
|
Sat Oct 15 06:55:35 -0700 2011 |
|
Naomi |
Mom to 5yr old TOF with heart condition |
|
Tue Oct 11 02:36:23 -0700 2011 |
|
Shannon Fraser-Westbury [link] |
TOF/OA (Find me on facebook) |
|
Mon Oct 10 03:56:51 -0700 2011 |
|
Shannon Fraser-Westbury [link] |
TOF/OA (Find me on facebook) |
|
Mon Oct 10 03:56:48 -0700 2011 |
|
Shannon Fraser-Westbury |
TOF/OA |
|
Mon Oct 10 03:54:14 -0700 2011 |
|
Shannon Fraser-Westbury |
TOF/OA |
|
Mon Oct 10 03:54:10 -0700 2011 |
|
Shannon Fraser-Westbury |
TOF/OA |
|
Mon Oct 10 03:54:06 -0700 2011 |
|
Our son A. |
Born december 2006, TOF/OA |
|
Sun Oct 09 14:19:08 -0700 2011 |
|
Alison Smith [link] |
Adult with OA |
|
Sun Oct 09 08:30:28 -0700 2011 |
 |
Hattie Arthur |
Mum to Oliver Arthur (28/1/11) with TOF / OA |
|
Fri Oct 07 16:46:19 -0700 2011 |
|
Laura Weyman [link] |
My Brother is a TOF he is now 21 |
|
Fri Oct 07 07:31:14 -0700 2011 |
|
Laura Wyman [link] |
My Brother is a TOF he is now 21 |
|
Fri Oct 07 07:31:10 -0700 2011 |
|
judy |
mom to fabio born 31/08/2009 |
|
Thu Oct 06 02:11:07 -0700 2011 |
|
judy |
mom to fabio born 31/08/2009 |
|
Thu Oct 06 02:11:07 -0700 2011 |
|
Samuel |
Prem TOF/OA |
|
Tue Sep 27 16:43:03 -0700 2011 |
|
Janine |
Mum to isabella born with tofs August 2011 |
|
Mon Sep 26 04:39:37 -0700 2011 |
|
Matthew Scott |
Son of Denise Mooney |
|
Fri Sep 16 10:00:51 -0700 2011 |
|
Denise Mooney |
Adult TOF |
|
Fri Sep 16 10:00:07 -0700 2011 |
|
Audrey Ingle |
TOF/OA |
|
Thu Sep 15 10:52:48 -0700 2011 |
|
Aaron Downey |
Aged 6 |
|
Wed Sep 14 16:30:06 -0700 2011 |
|
Mark Gardner |
OA |
|
Tue Sep 13 18:23:14 -0700 2011 |
|
leon's mum [link] |
leon has tof/ oa. looking for other parents to talk to. |
|
Wed Sep 07 04:38:53 -0700 2011 |
|
Liz Crabtree |
Phoebe - tof/oa |
|
Fri Sep 02 07:47:37 -0700 2011 |
|
TOFS Charity UK HQ [link] |
TOFS http://www.tofs.org.ukSt. George’s Centre 91 Victoria Road Netherfield Nottingham NG4 2NN ENGLAND |
|
Thu Sep 01 04:33:28 -0700 2011 |
|
Lynda Plenty |
Mother to Kristian (TOF) aged 14 yo |
|
Wed Aug 31 12:42:36 -0700 2011 |
|
Cath Cobden |
Mummy to Oliver born 14/07/09 with long gap oa. x |
|
Tue Aug 30 10:36:49 -0700 2011 |
 |
Lucy |
Mummy to Hamish born 5/2/11 born with TOF/OA |
|
Sun Aug 28 09:42:19 -0700 2011 |
|
Rachael wilcock |
mumto tof/oa Charlie wilcock |
|
Sat Aug 27 17:02:22 -0700 2011 |
|
Maude Family |
Izzie -TOF Lancs |
|
Thu Aug 25 04:21:50 -0700 2011 |
|
Fay TOF Mum |
belham3rd@yahoo.co.uk |
|
Thu Aug 25 02:07:19 -0700 2011 |
|
Kelly |
Mum of Louis born 17.5.2010 |
|
Wed Aug 24 16:41:02 -0700 2011 |
 |
Beatrice June |
Born 10-22-10 Tef/Ea Type C and doing great. |
|
Wed Aug 24 16:09:55 -0700 2011 |
|
Oliver King [link] |
long gap OA please check out website for local support |
|
Wed Aug 24 16:04:10 -0700 2011 |
|
emma |
tof/vacterl |
|
Wed Aug 24 16:02:22 -0700 2011 |
|
Bonnie |
Pediatric Respite Nurse |
|
Wed Aug 24 03:38:25 -0700 2011 |
|
Heather B |
Soon I'll be moving, but here for now. |
|
Mon Aug 22 10:12:44 -0700 2011 |
|
Suzanne Burgess |
Hi! |
|
Sun Aug 21 16:46:12 -0700 2011 |
|
Lynn |
Mum to TOF Daniel born 1996 |
|
Sat Aug 20 15:37:28 -0700 2011 |
 |
Katy Garrett |
OA Mum |
|
Thu Aug 18 23:10:24 -0700 2011 |
|
emily [link] |
mum to rosie born 05/07/06 |
|
Thu Aug 18 10:43:40 -0700 2011 |
|
vicky |
mum to amelia |
|
Wed Aug 17 13:31:13 -0700 2011 |
|
Betsan Howells |
Mared's mum |
|
Mon Aug 15 05:38:00 -0700 2011 |
|
Emma Mccallum [link] |
Hi we live in Tarbert argyll and i have a 13 year old TOF x |
|
Sun Aug 14 13:34:36 -0700 2011 |
|
Emma Mccallum |
Hi we live in Tarbert argyll and i have a 13 year old TOF x |
|
Sun Aug 14 13:32:29 -0700 2011 |
|
Louise Cullen |
Mum to Jared TOF/OA |
|
Sat Aug 13 15:33:23 -0700 2011 |
|
LisaM (Joel's Mum) |
TOF prem baby |
|
Tue Aug 02 16:28:16 -0700 2011 |
|
kate unsworth |
Baby Alice born tof |
|
Tue Jul 26 18:14:56 -0700 2011 |
|
Sian |
Mum to Leon Tof/Oa 11/11/10. Email, sianlouisebufton@yahoo.co.uk |
|
Tue Jul 19 10:13:17 -0700 2011 |
|
Nicolle |
TOF Mum to Anthony 2 yrs |
|
Sat Jul 16 22:45:32 -0700 2011 |
|
Debs, Joshua's Nanna |
Josh is a preemie with TOFS |
|
Sun Jul 10 15:43:27 -0700 2011 |
|
leonie moser wager |
born with tof/oa 2005 |
|
Mon Jun 27 16:24:11 -0700 2011 |
|
Scott |
Tof |
|
Mon Jun 27 11:22:51 -0700 2011 |
|
Scott |
Tof |
|
Mon Jun 27 11:22:27 -0700 2011 |
|
Scott |
Tof |
|
Mon Jun 27 11:22:19 -0700 2011 |
|
Scott |
Tof |
|
Mon Jun 27 11:22:14 -0700 2011 |
|
Julie |
TE Repaired at Columbia |
|
Fri Jun 17 18:43:39 -0700 2011 |
|
Marilyn McCallum |
Hi there I live in greenock, my little girl Aimee has tof x |
|
Wed Jun 15 18:18:05 -0700 2011 |
|
Shannon |
born 1995 tof/oa type D |
|
Wed Jun 08 05:47:17 -0700 2011 |
 |
Wiola |
Mum of Filip born with TOF-5months old |
|
Tue May 31 18:13:11 -0700 2011 |
|
ben smith |
tof - oa & vactral associations |
|
Tue May 31 11:25:12 -0700 2011 |
 |
marley thomson |
hi am marley i am 9mnths old i haf double tof! and hav had 5 ops already cnt wait to go hme and be with my brothers i have onli been hme once! |
|
Mon May 23 20:51:48 -0700 2011 |
|
Marks Gardner |
Adult OA |
|
Thu Apr 28 03:11:38 -0700 2011 |
|
Andy & Chris |
Parents of Charlie 10/10/08 |
|
Tue Apr 26 21:11:04 -0700 2011 |
|
lisa w |
hi, mum to tof/oa age 4 |
|
Tue Apr 26 15:53:33 -0700 2011 |
|
lisa w |
hi |
|
Tue Apr 26 15:50:20 -0700 2011 |
|
lisa w |
hi |
|
Tue Apr 26 15:50:16 -0700 2011 |
|
Colette |
Adult Tof |
|
Sat Apr 09 14:45:57 -0700 2011 |
|
Leigh |
Mother of 5year old (2/2/06) TOF/OA, and TAPVD leigh_elder02@hotmail.com |
|
Fri Mar 18 21:56:42 -0700 2011 |
|
Graeme |
TOF Here! |
|
Thu Mar 03 13:37:18 -0800 2011 |
 |
Borsodi Krisztina |
My Son TOF |
|
Thu Feb 17 14:14:37 -0800 2011 |
|
Werner Bieler Romero |
My son had surgery on 2005 AE long gap, he is doing great. Dispuestos a compartir experiencias... |
|
Sun Feb 13 00:14:55 -0800 2011 |
|
Werner Bieler Romero |
My son had surgery on 2005 AE long gap, he is doing great. Dispuestos a compartir experiencias... werner23@hotmail.com |
|
Sun Feb 13 00:14:52 -0800 2011 |
|
Sarah |
22 yr old TOF/OA (originally from, and treated, in Liverpool) |
|
Fri Jan 28 16:20:24 -0800 2011 |
|
Kathy [link] |
I am currently 40 years old. I was born with EA/TEF in Ontario. If you would like to know more please email me! |
|
Sun Jan 23 00:15:31 -0800 2011 |
|
karen rolfe |
6 year daughter looking for a TOF pen friend, please contact TOFS OFFICE |
|
Wed Jan 12 15:03:24 -0800 2011 |
|
Mark Gardner |
Adult TOF |
|
Sun Jan 02 15:01:43 -0800 2011 |
|
Vic |
Female born 1998 |
|
Wed Dec 29 17:31:30 -0800 2010 |
|
Donna Mummy to Jayden |
Jayden was born with Down Syndrome and TOF/AO |
|
Wed Dec 29 04:11:02 -0800 2010 |
|
roy |
17 month old tof |
|
Tue Dec 28 15:45:52 -0800 2010 |
|
Catrina Graffin Derry NI |
Mum to Conan born with tof/oa 10/6/06 |
|
Tue Dec 28 13:22:13 -0800 2010 |
|
Julie HB |
28 year old with vacterl tof/oa |
|
Tue Dec 28 08:32:58 -0800 2010 |
|
Matt |
2/5/96 Born with TEF/VACTERL. Problems w/recurrent pneumonias but doing very well |
|
Wed Dec 22 08:48:00 -0800 2010 |
|
Matt |
2/5/96 Born with TEF/VACTERL. Problems w/recurrent pneumonias but doing very well |
|
Wed Dec 22 08:36:39 -0800 2010 |
|
Hana Talo-Ferguson |
hi i have a son who is 4 years old who has tof from Napier NZ |
|
Wed Dec 22 04:20:25 -0800 2010 |
|
Belinda Reeve |
Mother of TOF/OA child born in 2009. belindareeve@optusnet.com.au |
|
Thu Dec 16 00:18:36 -0800 2010 |
|
katie aldridge [link] |
hello to tof families |
|
Mon Dec 13 08:48:10 -0800 2010 |
|
Maryann Boden (MacKenzie's Mom |
EA/TEF type c born in 2007 |
|
Wed Dec 08 22:09:37 -0800 2010 |
|
Louise Dearman |
Mum to tof Kayden xx |
|
Wed Dec 08 08:20:52 -0800 2010 |
|
Debbie Brewer [link] |
TOFS and Mesothelioma supporter |
|
Wed Dec 08 07:39:54 -0800 2010 |
|
Martina [link] |
Alexandra's mum, TOF, born 11.9.2010 in Stellenbosch |
|
Wed Dec 08 02:56:51 -0800 2010 |
|
Kerry |
mother of tof liam age 11yrs |
|
Tue Dec 07 16:59:21 -0800 2010 |
|
Kerry |
mother of tof liam age 11yrs |
|
Tue Dec 07 16:59:21 -0800 2010 |
|
Kerry |
mother of tof liam age 11yrs |
|
Tue Dec 07 16:59:20 -0800 2010 |
|
Kerry |
mother of tof liam age 11yrs |
|
Tue Dec 07 16:59:19 -0800 2010 |
|
Kerry |
mother of tof liam age 11yrs |
|
Tue Dec 07 16:59:16 -0800 2010 |
|
Darcie 29 yrs old [link] |
TEF Type C, Colon Interposition done, Epstein's Cardiac, VACTRAL |
|
Mon Dec 06 12:51:42 -0800 2010 |
|
Christina (Alabama) |
Jayda's Mommy |
|
Mon Dec 06 05:42:58 -0800 2010 |
|
Whitney Rohde [link] |
EA - Type A - extra long gap, repaired at 5 months |
|
Thu Dec 02 11:41:47 -0800 2010 |
|
Jaylyn |
Born 6/14/09 with type C EA/TEFRepaired at 3 days old at Levine Children Hospital in Charlotte, NC |
|
Tue Nov 30 19:39:14 -0800 2010 |
|
Brayden Post |
Type C EA/TEF, Tracheomalaysia, Gastroparesis, GERD, VSD, Left Hand Congenital Deformities. |
|
Sun Nov 28 17:05:02 -0800 2010 |
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Grace |
2 1/2 year old no G tube eats by mouth only! |
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Sun Nov 28 15:19:57 -0800 2010 |
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Stacy Knight |
Avery Kate was born with EA type A long gap |
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Sun Nov 28 10:52:03 -0800 2010 |
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Jonah |
EA/TEF, tracheomalacia 6/22/03 |
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Fri Nov 26 21:37:01 -0800 2010 |
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Margie Murray [link] |
mom to Dylan born 6/5/06 EA/TEF type C |
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Fri Nov 26 11:35:12 -0800 2010 |
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Regan Cowie |
Born w pure EA and is a glorious little girl! |
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Thu Nov 25 20:54:16 -0800 2010 |
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Lauren |
i have a TOF baby boy, 11 days old |
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Thu Nov 25 18:59:01 -0800 2010 |
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cameron reynolds [link] |
isolated oa long gap |
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Thu Nov 25 17:38:09 -0800 2010 |
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Renee Seaver |
almost 2 yrs old, tube fed and oral fed and doing well! |
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Thu Nov 25 17:29:59 -0800 2010 |
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Lydia [link] |
EA/TEF pt in Boston |
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Thu Nov 25 11:57:19 -0800 2010 |
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Alice McElhinney |
Adult TOF/OA |
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Tue Nov 23 16:19:45 -0800 2010 |
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Kay Leech |
Harriet (tof) lives here |
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Mon Nov 22 10:48:57 -0800 2010 |
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Kay Leech |
Harriet (tof) lives here |
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Mon Nov 22 10:48:55 -0800 2010 |
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Kay Leech |
Harriet (tof) lives here |
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Mon Nov 22 10:48:51 -0800 2010 |
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Sophie |
Greetings from Stedham |
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Fri Nov 19 12:07:27 -0800 2010 |
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Shannon Stevens |
QLD Australia / Adult TOF 25 yrs |
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Fri Nov 19 04:13:42 -0800 2010 |
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vicky badby |
my son tyler is a tof |
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Thu Nov 18 09:43:47 -0800 2010 |
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Helen Drew [link] |
Mum to Olivia tof/oa born 17/05/2010 |
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Thu Nov 18 09:24:55 -0800 2010 |
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Claire |
Mum to Max born with TOFs |
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Wed Nov 17 13:25:09 -0800 2010 |
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Cory Hall [link] |
EA/TEF Type B 05/17/1987 |
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Thu Nov 11 23:07:03 -0800 2010 |
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Corey De Leon |
born with EA TF 6/25/92 |
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Mon Nov 08 15:38:58 -0800 2010 |
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Corey De Leon |
EA/TF born 6/25/92 |
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Mon Nov 08 15:37:59 -0800 2010 |
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Emma Holland |
Daughter Rebecca born 01.07.2010 - contact emma_holland@msn.com |
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Wed Nov 03 04:34:46 -0700 2010 |
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Carol Johnstone |
Reilly 09/09/08 TOF/OA |
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Tue Nov 02 06:06:25 -0700 2010 |
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laura |
mum to O/A Ashley |
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Mon Oct 25 12:56:03 -0700 2010 |
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Stephanie |
I have a 4 year old that has TEF, VSD, Vactral and sub-mucus cleft palate. |
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Sat Oct 23 01:03:36 -0700 2010 |
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adam |
tof/oa born 1996 |
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Fri Oct 22 19:58:37 -0700 2010 |
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McGrane Family |
Philip -adult TOF |
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Mon Oct 18 10:00:43 -0700 2010 |
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Vincent |
TEF Type C born 06/06/2010 |
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Sun Oct 17 22:03:55 -0700 2010 |
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Faye Barnes |
TOF/OA Adult |
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Tue Oct 12 15:20:45 -0700 2010 |
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alison |
mum to jack |
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Sat Oct 09 15:26:56 -0700 2010 |
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bev stark [link] |
mum 2 tof oa bailey 10yrs |
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Sat Oct 09 12:43:26 -0700 2010 |
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lyndsey |
tof mam of james aged 5 |
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Sat Oct 09 12:32:40 -0700 2010 |
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nessie [link] |
hi, mummy to tof child, little girl age 4 xxx |
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Sat Oct 09 11:12:16 -0700 2010 |
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nessie [link] |
hi, mummy to tof child, little girl age 4 xxx |
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Sat Oct 09 11:12:12 -0700 2010 |
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Lucy Peebles |
Wife to adult tof, hubby willing to answer any Q's |
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Fri Oct 08 13:35:35 -0700 2010 |
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Sarah [link] |
Mummy to VACTERL son Max |
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Fri Oct 08 11:34:13 -0700 2010 |
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Kayt Wharton |
TOF/OA baby 2004 |
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Fri Oct 08 04:12:44 -0700 2010 |
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Gayna |
Im a TOF adult |
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Thu Oct 07 08:12:43 -0700 2010 |
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Abby Ducksbury |
Mum to TOF baby Lucy |
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Wed Oct 06 04:30:39 -0700 2010 |
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Cristi |
Mom of Marleigh (4) orginally from Michigan |
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Wed Oct 06 02:05:18 -0700 2010 |
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Michael |
12/14/2009 TEF/EA Repair at Duke |
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Tue Oct 05 16:40:38 -0700 2010 |
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Victoria Johnston |
TOF son Luke aged 2.5 |
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Tue Oct 05 03:44:36 -0700 2010 |
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Donovan |
Type B long gap esophageal atresia and TEF |
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Mon Oct 04 21:45:21 -0700 2010 |
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Jon Anderson [link] |
Caliana Anderson 6/29/08 TEF-C |
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Mon Oct 04 21:35:31 -0700 2010 |
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Gary Spiers |
Adult, (First?) Long Gap repaired by colon interposition in 1963 @ OSH, reworked Edinburgh Royal Infirmary 1989. |
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Mon Oct 04 10:30:47 -0700 2010 |
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Kaylee Williams |
Milly May TOF/OA Baby 01/07/08 |
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Sun Oct 03 16:56:42 -0700 2010 |
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Brenda [link] |
Kiera was born with EA, coloboma, vertebral abnormlities. She was diagnosed with dumping syndrome and is on 24 h continous feeds. |
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Sat Oct 02 20:52:45 -0700 2010 |
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Candyce Ashley [link] |
Daughter Noelle born April 6 2010 ea/tef type c |
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Sat Oct 02 09:44:49 -0700 2010 |
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Tina naden [link] |
Isolated esophageal atresia 1997 |
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Fri Oct 01 22:34:15 -0700 2010 |
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Shasta Looney |
Deakon Looney born 9/3/05 with TEFand EA |
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Fri Oct 01 16:27:43 -0700 2010 |
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Michele [link] |
Marlaina Jane Moore |
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Fri Oct 01 08:02:57 -0700 2010 |
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Ami & Alan |
Parents to Lowrie OA/TOF |
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Fri Oct 01 06:58:30 -0700 2010 |
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Sonia |
Mum of Riley born June'07 Long Gap TOF |
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Thu Sep 30 03:55:07 -0700 2010 |
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Valerie McElroy [link] |
Jake 01/31/01 EA with TEF |
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Wed Sep 29 22:43:56 -0700 2010 |
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Alison |
Mum of Philip April 2010 TOF/OA |
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Wed Sep 29 15:28:43 -0700 2010 |
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Michelle and Kayla [link] |
Kayla was born on the 10/10/08 with Tof/oa |
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Tue Sep 28 03:16:46 -0700 2010 |
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Shiloh Fairbanks [link] |
Daughter Keira born with EA/TEF type C 10/14/09, repaired in SLC, UT |
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Tue Sep 28 02:15:21 -0700 2010 |
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Laura Overdyk |
Narre Warren South |
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Tue Sep 28 01:36:03 -0700 2010 |
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Carlie |
Great Idea! Looking forward to catching up with the oldies and newies soon as the weather gets better. |
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Tue Sep 28 01:29:58 -0700 2010 |
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Sharma [link] |
mum to Larni TOF |
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Tue Sep 28 00:37:31 -0700 2010 |
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Amber Andress |
Joshua 03/15/10 Long Gap (Foker Tech) |
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Mon Sep 27 23:35:23 -0700 2010 |
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Amber Andress |
Joshua 03/15/10 Pure EA (long gap Foker Tech) |
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Mon Sep 27 23:29:10 -0700 2010 |
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Leslie Spencer [link] |
Daughter is now 16 months |
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Mon Sep 27 23:01:53 -0700 2010 |
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Gill & Duncan Jackson [link] |
Parents to Tof Laura & Alec |
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Mon Sep 27 18:53:35 -0700 2010 |
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Ireland Meyer [link] |
Born on 12/15/07 with long gap EA currently unrepaired. |
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Mon Sep 27 18:22:44 -0700 2010 |
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Harry Barlow aged 2 yrs |
born with TOFs and treated at MCH |
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Mon Sep 27 16:16:07 -0700 2010 |
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Mark |
Adult TOF. Born 20/08/1980 |
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Mon Sep 27 13:00:44 -0700 2010 |
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Claudia Ziefle [link] |
EA/TEF,1953,1988 |
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Mon Sep 27 11:26:13 -0700 2010 |
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Denise |
Mom of TEF baby Aidan |
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Mon Sep 27 09:41:21 -0700 2010 |
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John Withers |
off facebook tofs group |
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Mon Sep 27 06:33:33 -0700 2010 |
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Kristin Cooley |
kcooley209@hotmail.com |
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Sun Sep 26 16:10:19 -0700 2010 |
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James L |
born 10/23/09 |
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Sun Sep 26 06:50:05 -0700 2010 |
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Amber Wright [link] |
13 yrs old in 2010 |
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Sun Sep 26 05:24:38 -0700 2010 |
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Alison Bolz [link] |
Tommy, my TEF boy, born 10/21/09 |
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Sun Sep 26 02:09:15 -0700 2010 |
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Alison Bolz [link] |
Tommy, my TEF by, born 10/21/09 |
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Sun Sep 26 02:09:08 -0700 2010 |
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Amy Taylor [link] |
mom of my beautiful TEF daughter Kya Taylor |
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Sun Sep 26 00:46:34 -0700 2010 |
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Michelle [link] |
Mum to a 2 year old Tof-oa |
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Sat Sep 25 07:10:48 -0700 2010 |
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Michelle [link] |
Mum to a 2 year old Tof-oa |
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Sat Sep 25 07:09:35 -0700 2010 |
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Katy Moylan |
TOF mum to Conor 2.5 yrs |
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Sat Sep 25 00:26:53 -0700 2010 |
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roy and joanne [link] |
18 month child with tof oa, |
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Fri Sep 24 15:42:36 -0700 2010 |
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christina wilson |
mummy to Ella TOF/OA |
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Fri Sep 24 10:37:11 -0700 2010 |
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Lorraine Doyle |
8 years old and doing fantastic now |
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Fri Sep 24 09:53:12 -0700 2010 |
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diane maskrey [link] |
tof mummy to connor born ocober 2006 |
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Fri Sep 24 04:20:36 -0700 2010 |
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Jody and Jack [link] |
jody.dillon@optusnet.com.au |
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Thu Sep 23 21:44:55 -0700 2010 |
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Jody and Jack |
jody.dillon@optusnet.com.au |
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Thu Sep 23 21:43:26 -0700 2010 |
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Sharie |
Mom to Kayla, born Oct 2006, Type C EA/TEF. email chanceslucky@hotmail.com |
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Thu Sep 23 09:18:49 -0700 2010 |
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hayley thomson |
TOF mummy 2 George born 15/05/10 |
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Thu Sep 23 05:00:19 -0700 2010 |
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Lori [link] |
Brandon, 3 with EA/TEF, tracheomalcia, kidney reflux, heart defect, subglottic stenosis and cyst |
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Wed Sep 22 20:16:42 -0700 2010 |
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Ellen Dove |
LI/ NY TEF Child - C |
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Wed Sep 22 18:08:54 -0700 2010 |
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Cheryl Unrau |
I have a 19 month old son who has EA, he also had other complications (VACTRAL, trachea malasia). He is still currently tube fed but we are working on weaning. |
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Wed Sep 22 12:40:06 -0700 2010 |
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naomi |
josephs mom |
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Wed Sep 22 08:13:49 -0700 2010 |
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naomi |
josephs mom |
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Wed Sep 22 08:13:43 -0700 2010 |
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leckie |
tof mummy to my wee star mason |
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Wed Sep 22 08:11:16 -0700 2010 |
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Belinda Webb mummy to Chloe we |
Feel free to add me on facebook |
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Wed Sep 22 06:25:19 -0700 2010 |
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Gloria Notario [link] |
Mum to David! 3 years old TOF boy |
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Wed Sep 22 06:16:19 -0700 2010 |
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Tracey Thompson [link] |
Mum to TOF/OA Lolah age 4 |
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Wed Sep 22 05:14:11 -0700 2010 |
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Tracey Thompson [link] |
Mum to TOF/OA Lolah age 4 |
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Wed Sep 22 05:10:47 -0700 2010 |
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Liz |
, |
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Tue Sep 21 17:30:27 -0700 2010 |
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Jenny McInnes [link] |
mum to Riley |
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Tue Sep 21 17:15:37 -0700 2010 |
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deonne pidgeon |
mum of tof baby |
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Tue Sep 21 17:01:17 -0700 2010 |
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Carie-Anne Dumbleton |
Mummy to Charlotte TOF/OA born 27/07/07 |
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Tue Sep 21 16:55:42 -0700 2010 |
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Carie-Anne Dumbleton [link] |
Mummy to Charlotte TOF/OA born 27/07/07 |
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Tue Sep 21 16:55:38 -0700 2010 |
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Emma Grant [link] |
Adult Tof |
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Tue Sep 21 13:23:11 -0700 2010 |
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Emma Grant |
Old tof |
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Tue Sep 21 08:11:21 -0700 2010 |
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Joanne (JONJOE) |
Mum to 3 year old TOF Isobel |
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Sun Sep 19 17:04:50 -0700 2010 |
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Logan Family [link] |
this is where our son Lewis aged 9 lives born withTOF/OA |
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Sun Sep 19 17:02:47 -0700 2010 |
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Rachael Rowley |
Mum to Freya - Tof daughter born 2/1/2010 |
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Sun Sep 19 14:16:40 -0700 2010 |
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Rachael Rowley |
Mum to Freya - Tof daughter born 2/1/2010 |
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Sun Sep 19 14:16:36 -0700 2010 |
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stockton-on-tees [link] |
i.m bev a tof mum x |
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Sat Sep 18 17:39:12 -0700 2010 |
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Julie Spier |
TOF mom to Samuel Nov 08 |
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Sat Sep 18 16:09:17 -0700 2010 |
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lauren evans |
neice born with tof |
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Sat Sep 18 16:04:38 -0700 2010 |
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Holly |
Daughter Olivia born TOF/OA July 2009 |
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Sat Sep 18 15:03:40 -0700 2010 |
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Barbara McKenna |
Shakeyjakey on the tofs website |
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Sat Sep 18 13:36:28 -0700 2010 |
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Emily McLellan |
emmloumcl@hotmail.com |
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Sat Sep 18 05:30:53 -0700 2010 |
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Emily McLellan |
emmloumcl@hotmail.com |
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Sat Sep 18 05:30:49 -0700 2010 |
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Jenson Carter [link] |
Long Gap OA with pulmonary atresia and severe tracheomalaica - lil fighter who's just about fixed xx |
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Fri Sep 17 15:18:11 -0700 2010 |
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kim davis |
mum of tof jack 21 months |
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Fri Sep 17 12:33:57 -0700 2010 |
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kim ward [link] |
mother to a 11 week old |
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Thu Sep 16 19:20:13 -0700 2010 |
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Emma Johnson |
Jack TOF/OA born May 2006 |
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Thu Sep 16 15:33:57 -0700 2010 |
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Bernadette May [link] |
NJ TOF/EA Type C mum |
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Wed Sep 15 19:51:44 -0700 2010 |
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joanne |
joanne_66@hotmail.com |
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Wed Sep 15 15:04:09 -0700 2010 |
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leanne |
tof mum to johnathon |
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Wed Sep 15 10:12:21 -0700 2010 |
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Michelle WIlliams |
Max Myall born 28.02.08 TOF/OA |
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Wed Sep 15 10:07:17 -0700 2010 |
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Joanne Taylor |
Mum to Devin, TOF/OA. email: jo_devin@hotmail.com |
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Wed Sep 15 01:37:13 -0700 2010 |
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madisons mum n dad n 4 sisters |
hi to all. |
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Tue Sep 14 18:09:25 -0700 2010 |
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Dowson Family |
Our son Casper has OA |
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Tue Sep 14 17:02:24 -0700 2010 |
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Emma |
Mummy to my little angel Rebecca born July 2010. |
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Tue Sep 14 15:25:21 -0700 2010 |
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mason linford [link] |
born 8,9,2010 |
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Tue Sep 14 10:11:29 -0700 2010 |
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mason linford [link] |
born 8,9,2010 |
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Tue Sep 14 10:11:29 -0700 2010 |
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Jane |
TOF Mum to 2 year old Sophia. email koda28@hotmail.com |
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Tue Sep 14 05:57:28 -0700 2010 |
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susan Vrind [link] |
Mum of 9 year old TOF, Owen |
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Tue Sep 14 05:56:12 -0700 2010 |
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claire [link] |
would love to meet other mummys |
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Tue Sep 14 04:46:16 -0700 2010 |
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Michelle Howe [link] |
TOF/OA mum |
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Tue Sep 14 01:52:31 -0700 2010 |
 |
pediatric Hospital |
Sulaimani |
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Mon Sep 13 18:26:45 -0700 2010 |
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Tiffany Dietrich |
Joshua's mother |
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Mon Sep 13 18:17:55 -0700 2010 |
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Tiffany Dietrich |
Mother of Joshua (TOF) |
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Mon Sep 13 18:17:50 -0700 2010 |
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claire carey [link] |
im petersmum from the tofs website |
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Mon Sep 13 18:08:15 -0700 2010 |
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ELIZABETH BROSNAN |
MUM TO PATRICK 7, CO. KERRY, IRELAND |
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Mon Sep 13 17:48:18 -0700 2010 |
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mrsbranz |
hiya to all fellow TOF/OA peeps! |
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Mon Sep 13 16:33:03 -0700 2010 |
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ELIZABETH BROSNAN [link] |
A KERRY PARENT |
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Mon Sep 13 16:28:24 -0700 2010 |
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Lucy |
Toms mom tof/oa |
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Mon Sep 13 15:59:55 -0700 2010 |
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Julia [link] |
Mom to Hugo, TOF/OA born Dec 2006 |
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Mon Sep 13 15:57:38 -0700 2010 |
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gill cox |
great idea |
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Mon Sep 13 12:06:14 -0700 2010 |
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gill cox |
OA mum |
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Mon Sep 13 12:06:13 -0700 2010 |
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Carolyn Seeley [link] |
21yr old TOF son - doing great. |
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Mon Sep 13 10:15:35 -0700 2010 |
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Kim and Dan |
Hugo's parents, email us on hugomummy@btinternet.com or skyler01uk@hotmail.com |
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Mon Sep 13 08:44:22 -0700 2010 |
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Debbie Reid |
Mummy to Poppie Tof |
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Mon Sep 13 08:04:42 -0700 2010 |
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scott howarth |
born with tofs |
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Mon Sep 13 07:35:59 -0700 2010 |
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catherine mullen [link] |
mummy to daniel tof baby 2008 |
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Mon Sep 13 07:05:43 -0700 2010 |
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Adele |
Adelelee (mummy to TOF Serena Aged 4) Contact me through TOFs |
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Mon Sep 13 06:46:09 -0700 2010 |
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Adele |
Adelelee (mummy to TOF Serena Aged 4) Contact me through TOFs |
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Mon Sep 13 06:46:06 -0700 2010 |
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Adele |
Adelelee (mummy to TOF Serena Aged 4) Contact me through TOFs |
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Mon Sep 13 06:46:03 -0700 2010 |
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Samib |
adult tof/oa |
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Sun Sep 12 18:00:13 -0700 2010 |
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Samib [link] |
adult tof/oa - samib2409@hotmail.co.uk |
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Sun Sep 12 18:00:09 -0700 2010 |
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Sarah Jones |
Married to Simon parents to Toby |
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Sun Sep 12 17:26:03 -0700 2010 |
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claire |
TOFs |
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Sun Sep 12 14:40:18 -0700 2010 |
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Belinda |
Feel free to message me on facebook :0) |
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Sun Sep 12 12:56:08 -0700 2010 |
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Chelly |
Millie May TOF Baby |
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Sun Sep 12 10:01:18 -0700 2010 |
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Chelly |
Millie May TOF Baby |
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Sun Sep 12 10:01:15 -0700 2010 |
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Paula marsh [link] |
Grandson tofs o/a |
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Sun Sep 12 09:15:40 -0700 2010 |
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RachelH |
TOF mum to Laure |
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Sun Sep 12 06:51:55 -0700 2010 |
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RachelH |
TOF mum to Laure |
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Sun Sep 12 06:51:55 -0700 2010 |
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Erica Case [link] |
Mum to Eve, 2yr old TOF/OA Ericaxcase@aol.com |
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Sun Sep 12 06:08:59 -0700 2010 |
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Lynda Plenty |
Mother of Kristian (13 yrs) happy to help anyone new to it. can email me at dancetheworld@aol.com |
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Sun Sep 12 05:42:47 -0700 2010 |
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sarah mayes |
tof mummy in stowmarket.xx |
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Sun Sep 12 04:08:43 -0700 2010 |
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sarah mayes |
tof mummy in stowmarket.xx |
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Sun Sep 12 04:08:41 -0700 2010 |
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sarah mayes |
tof mummy in stowmarket.xx |
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Sun Sep 12 04:08:39 -0700 2010 |
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maxine [link] |
mummy to Eden who is TOF/OA |
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Sat Sep 11 17:52:39 -0700 2010 |
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sharon keating [link] |
TOF mum living in Dublin |
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Sat Sep 11 17:38:18 -0700 2010 |
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Jackie |
TOF Adult |
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Sat Sep 11 17:08:50 -0700 2010 |
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nathans Dad |
west haddon |
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Sat Sep 11 16:50:43 -0700 2010 |
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Kelly |
Harrys mummy 2010 - kelly.sweeney7@gmail.com |
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Sat Sep 11 16:48:25 -0700 2010 |
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ANDREW AND CASSIE |
8 MTH OLD LAVINIA'S MUMMY AND DADDY |
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Sat Sep 11 16:44:29 -0700 2010 |
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marie quille |
tof mum |
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Sat Sep 11 16:42:05 -0700 2010 |
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marie quille |
tof mum |
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Sat Sep 11 16:42:01 -0700 2010 |
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Belinda & Lee Simpson |
Mummy & Daddy to 9m old Alexander (TOF/OA |
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Sat Sep 11 16:40:46 -0700 2010 |
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AmyF [link] |
30 mins from Petersborough- of tofs forum |
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Fri Sep 10 17:49:03 -0700 2010 |
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Kathryn and Mark [link] |
Market Deeping, tof parents of tof forum |
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Fri Sep 10 17:48:00 -0700 2010 |
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Downhaka |
tof mum |
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Fri Sep 10 17:43:31 -0700 2010 |
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AlisonS [link] |
from east devon, tof mum of tofs forum |
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Fri Sep 10 17:40:09 -0700 2010 |
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Lulu |
Tof mum of tofs forum |
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Fri Sep 10 17:33:37 -0700 2010 |
 |
SamibTOF |
Sam from Dorset |
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Fri Sep 10 17:27:24 -0700 2010 |
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Christophers mum |
tof mum - freyacrosbie@hotmail.co.uk or brucerennie1969@aol.com |
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Fri Sep 10 17:06:04 -0700 2010 |
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Jayne |
Frances' mum - jayneunsworth321@btinternet.com |
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Fri Sep 10 17:02:53 -0700 2010 |
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Claire81 [link] |
Tof mum of tofs forum |
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Fri Sep 10 16:57:33 -0700 2010 |